Scout’s Story

Scout is the sunny, spunky child of Gabe and Mandy. She was diagnosed with Loeys-Dietz Syndrome, a rare connective tissue disorder, as a newborn in 2009. She faced her first surgery when she was a month old, had two more before her second birthday, and will face more as she grows. Of special concern is her aorta, which is not growing in correct proportion with her heart and the rest of her body. For this reason, Scout had major heart surgery in May 2011 at Johns Hopkins Hospital.