• Blog
  • …but then I guess we have to

    Welp, we were doing good with holding off on surgeries, but all good things must come to an end (so I’ve heard). Something we hadn’t done was take Scout to the dentist. We are good about brushing her teeth and I thought I was keeping an eye on things, but one night I noticed a […]

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  • Be Excellent to Each Other

    First day of School School You just can’t take a kid like Scout to the child-care at the Y and not have visions of other kids pulling her arm out of her socket or accidentally bumping into her resulting in some kind of ER visit, or even just plain old getting whatever bug is surfacing […]

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  • We could, but we won’t

    When Scout was first diagnosed with Loeys-Dietz Syndrome at around 1 month old, we had already had a tumultuous beginning. It’s too much to write about right now, but the unofficial diagnosis came while she was recovering from her first heart surgery (PDA Ligation) and congestive heart failure which was a result of her PDA […]

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  • October Cardiology Visit

    We’ve been busy with many things.   Scout has had a lot of doctors and therapy appointments and we are still waiting to see her orthopedic surgeon, so we will have an update on everything soon. We took some video of Scout’s visit to the Cardiology clinic yesterday.  She did great.  Not many tears during the echo, […]

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  • Audrey

    If you’ve been following Scout’s story, then you may remember us mentioning sweet little Audrey, a number of times.  Maybe you have even been Praying for Audrey.  Early this morning at around 1am, her mother wrote this: “Heaven became sweeter this morning as Audrey safely arrived in the arms of Jesus. We will see her […]

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  • A wedding and a vacation

    At some point when Scout was still in Hotel Johns Hopkins, our friends asked us if Scout would be a flower girl in their wedding which would take place at the end of August. First of all, we were honored, and second, the thought that she could even perform such a task at the time […]

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  • Tea parties on the ceiling?

    Sometimes I feel like a missionary giving a weekly report,  like we need to keep everyone updated on all of the happenings in our foreign country.  And so,  here is another report.  But you know what is so absolutely awesome?  This is just a report.  It’s not an urgent plea for prayers.  Scout is getting […]

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  • Guest Blogger-Katherine Mitchell

    Our friend Katherine (who we’ve mentioned before) is getting a new aorta tomorrow if all goes according to plan. As we have seen, plans can change, but, that’s what’s on her and Dr. Cameron’s agenda tomorrow.  Katherine is a witty, talented, all around awesome 23 year old.  She visited Scout while she was in the […]

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  • Back to the Future

    Waiting in the neurology exam room The Thursday  before last, we went to see a neurologist to talk about Scout’s neck. The short of the long of it is, nothing seems to be alarming, but they would like to do some more tests just to make sure. Of course, an MRI is preferable to them, […]

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  • Other people’s awesomeness

    Just wanted to share  this news story about a young man named Brandon,  and the church he is a part of.  We sat by his mom and dad at the Loeys-Dietz conference last summer. It’s great to see what people can do when they walk in Love.  We are proud to know a lot of […]

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  • Friends

    Kenzie had her surgery yesterday and is now on her way to recovery.  You can go here for the latest.  Her family would love your prayers. Also,  please keep remembering Audrey.  She’s still got a long road ahead of her.   Thank you for all that you do.  

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  • Cousins

    Scout and her cousin, Zane got to play in the pool today. They hadn’t seen each other since she got back from Baltimore. Lovin’ those smiles, lovin’ this summer!

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  • Independence Day

    This morning we took the last drug weaning patch off. July 4th was Scout’s personal independence day from methadone. She has been understandably emotionally fragile through all of this, but we are so glad that this part of the recovery is over. She also needs a haircut, but I think anyone coming at her with […]