• Blog
  • Bubbles and Rasberries

    Scout is healing up pretty well here at home. I think I’ll have to do a separate post sometime about Scout’s teeth, but I wanted to share some nice moments and let you know she is doing well.  There is so much hurt and negativity that this world has to offer, that in order for […]

  • Blog
  • recovering at home

    Getting home from the hospital is just one of the steps in the healing process. We are just so glad that Scout did well enough to come home so soon (in Scout terms). She’s having very grumpy/moody times but we are also seeing that smile too. She needs a lot of extra hugs and snuggles […]

  • Blog
  • Today was a good day

    Last night we finally got Scout to open her eyes. I think she was afraid to, but once she opened them, she found out it wasn’t so bad after all. We took her for a walk and tried to get her to look around. There are some nice spots at the children’s hospital here that […]

  • Blog
  • Day of rest

    Understandably, Scout is in a lot of pain.  We are trying to stay on top of that.  We are trying to give her the most restful day as possible. Keeping the room quiet and florescent lighting free. She’s the most disturbed when the doctors or nurses come in to get her vitals or check on […]

  • Blog
  • Recovery

    Scout’s little body made it through the surgery and it appears to be doing well. So far, we have not run into any post surgical respiratory issues, such as pneumonia, collapsed lung, and whatnot, and we are very thankful for that. She is on room air. Her eye surgeon said that her muscles were very […]

  • Blog
  • Holding Room

    Waiting in the holding room. They took her back for surgery about 20 minutes ago. We would appreciate it if you remembered to pray for Scout through the day today. See last post for more specifics. Thank you all.

  • Blog
  • The next course of action

    Posts are harder to make these days, so stop judging me right this second for grammatical, spelling, and other errors you may find within the following… Once I felt like I had a grip on the newborn and Scout thing, I knew we had to schedule Scout’s next procedure. It started to become very apparent […]

  • Blog
  • Opry

    I may have lost my mind to let my husband talk me into taking these children to a “concert” last night. But it happened. Gabe had free tickets to the ‘Grand Ole Opry‘ last night (something that is not uncommon if you live here) and tried for two days to convince me to go. Here’s […]

  • Blog
  • Guest Poster Blogger – Katherine Mitchell

    Our friend Katherine is back in Baltimore for her 1 year follow up from her aortic root replacement. She wrote this note last night and graciosly let me use this on this little page.  Katherine has a talent for putting words to the experience that is connective tissue disorders.  Did that sentence even make since? […]

  • Blog
  • How’s about THAT for timing?!

    A couple of hours after I posted this, this happened. So to spell it out for you. A year to the day Scout exited Johns Hopkins Hospital, Scout’s brother exited my womb. How’s about that for God’s timing? The details- He’s a fella, 7’7lbs, 20inches, his name is Ash. And I know you are wondering, […]

  • Blog
  • Everything that I need

    It’s really hard for us NOT to think about what happened one year ago today:   Day 26 from lilDRAGON on Vimeo. We walked out of the hospital with our baby girl. Nothing about our day to day is easy, but everything about it is worth it. I know there are plenty of you that […]

  • Blog
  • Dadnabit!

    Scout is still trying to recover from whatever this gruesome little bug is that we all caught. Gabe needed to travel for work on Sunday night (bad timing), but we were both still worried about Scout. So I asked him if he could at least try to leave on Monday morning to see how Scout […]

  • Blog
  • Quick Update

    There is much to tell you about Scout’s activities, but we wanted to just give you a quick update. Scout will not be having surgery tomorrow, for reasons we will explain for a longer blog post later. She did have an ER trip on Thursday night because of a high fever and labored breathing, but […]