Everything that I need

It’s really hard for us NOT to think about what happened one year ago today:

 

Day 26 from lilDRAGON on Vimeo.

We walked out of the hospital with our baby girl.

Nothing about our day to day is easy, but everything about it is worth it. I know there are plenty of you that are still praying for her. We thank you.

Gabe and I celebrated our 12th wedding anniversary this weekend with Scout. What did we do? We took her to Cheekwood to see some awesome treehouses, let her cook her own breakfast at the Pfunky Griddle, let her pick out her own fish at the aquatic critter, and then she spent some time with her favorite Nashville grandparents while Gabe and I caught a movie and some thai food (the thai food was an attempt at trying to encourage Scout’s sibling to make an appearance).

Here are lots of pics for you:

As you peruse through this little collection,  I encourage you to look at every shot as gifts.  Every one of these shots are just small moments of huge blessings.  These are things not only Gabe and I prayed for,  but YOU did to.  Maybe not specifically,  but you know what I mean.

Petting a lil’ cat at a wedding on a farm

 

Watering the herb garden with Dad

 

Treehouse at Cheekwood

 

More treehouses at Cheekwood

 

Discovering the wonders of a ViewMaster

 

Cooking breakfast at the Pfunky Griddle

 

Blessing #9,999,999 – breathing easily  (and on her own) in Dad’s arms (something we so desperately prayed for so many times last year).

 

Scout’s new fish she named “fishy”

At some point during dinner Gabe asked me if this was an acceptable anniversary. I don’t know how you feel, but maybe your perspective changes after life starts happening. We’re just happy to be together, doing whatever. Who cares about big trips or purchasing gifts?! Scout’s favorite song right now is by Bret Mackenzie from the new Muppet Movie. I can’t help but get teary about it when I see this little kid smiling and singing the word’s “I’ve got everything that I need right in front of me”. Ain’t that the truth?!

We are so very blessed in so many ways. We want to thank you all for your continued support for Scout. She is facing other surgeries soon that we have not scheduled yet. I want to get a handle on caring for Scout with her doctor and therapy schedule, as well as a newborn before we jump into another hospital stay. Once I get a handle on that, then the first procedure will most likely be an eye muscle strengthening surgery. I’m telling you this because we are asked all of the time if Scout is done with surgeries. I need to be blunt about this for my own sanity of repeatedly answering this question. The answer is no. Unfortunately, she may never be done with procedures that need to be done. Please understand that there are days I can handle that innocent and loving question and days where I cannot. We do the best we can with every new day and take our days one at a time. This may also be due to the fact that I am also answering the “when are you due?” question 2 million times a day. I know, I know, it’s all out of love, and so I have no room to complain. I can’t tell you how much we appreciate the folks that take extra care to understand Scout’s needs physically, nutritionally, emotionally, and spritually. Thank you for that. She’s doing great, she does require extra care when it comes to most every task from eating and drinking, to walking, sitting in a chair, to going to the bathroom, to even the way she should be picked up, but she’s a champ at it, and we are blessed to have folks that want to understand and help her (and us) and take that extra care. Thank you.

Oh, and the answer to the “when are you due?” question is- Soon and very soon. I’ll let you know when it pops out, K?. Prayers are welcome.

I leave you with Scout singing her fave song for you. Don’t ask her to do it live for you, ’cause she totally won’t.

 

Everything that i need from Scout McCauley on Vimeo.

15 Comment

  1. CeeCee says:

    Why do you want to make me cry and stuff? I also want to thank everyone for the prayers they shared. I’m not sure how I personally would have made it through the last three + years if I hadn’t been assured of all of your support. God is so good.

  2. Thanks, Mandy. All the blessings of Heaven be on your heads and peace in your hearts.

  3. Lydia says:

    I’m glad I’m not the only one asking you annoying questions, but you probably wish I was the only one. I know how tiring it is to retell the same stories over and over. But your stories are especially painful. I know I have been so richly blessed in having had as few health problems with my children as I have. I have had so few times in the almost 15 years that I have been a parent when I have seen my children suffer. Dilara has had the worst record so far, with having to have had 2 procedures under general anesthesia–dental work, and pulling a penny out of her throat, but those were relatively quick and easy and had very little downtime. I really like the blog just for this reason…I guess I hadn’t read any updates lately. Thanks for this one. I continually pray for Scout and her two amazing parents. I really hope and pray that she’ll end up needing not many more procedures…I believe God can heal her and even if he chooses not to miraculously heal her, maybe he will give her the best of all expected outcomes for every one of her physical problems and also give her emotional strength and stamina. I don’t know what the worst case scenario that could have been expected at this point, but I really have to make a conscious effort to remember that she is so emotionally and physically fragile because she looks and acts so “normal”. At the same time, she is stronger than I think I would be if I had been through what she’s gone through. She amazes me, and so do her parents. We love you all!

    1. Natalie Whitton says:

      I am so happy to see that Scout has done so well in the past year. It is quite the accomplishment. I want to let you know that I am praying for Scout, the new baby, and her parents. She will be a wonderful older sister just as she is a wonderful child! God bless you!! ~Natalie Whitton

  4. gwen says:

    miss my girl!

  5. polly says:

    Thanks for the update! Sounds like a perfect way to celebrate an anniversary. Love, Love her rendition of the muppet song. Can’t wait to show David!

    Prays for a healthy delivery and good transition for your family with the new baby!

  6. Kathy says:

    This day seems to be exciting a lot!
    Thank you for sharing what is on your heart! Love the song! Love you all!
    All is well! :)

  7. Mark and Carolyn says:

    So happy for ALL of you. Thanks for sharing your special days with us. May God be with and keep you ALL in His Loving Care. Hope to be able to talk with you soon. Love and prayers for each of you.

  8. Stephanie says:

    I love your posts, Mandy. I love your family. I was recently thinking that it had been about a year since that long and anxious hospital stay. I still think about that video of you leaving with her in your arms. What a blessed year of loving that little one and experiencing life with her. I was so happy to read about your new baby boy being born! I pray for God’s daily blessings on every family member!

  9. Stephanie says:

    Oh, and Happy Anniversary! Ditto on your statement about not caring about trips or fancy gifts. Yes, just being together and counting your blessings is more than enough. Exactly how I feel. Hope you have many, many more!

  10. Brittany says:

    Been looking for new updates and this of course makes me teary eyed. I praise God Scout has such an honest, open, loving and dedicated mom and dad and that he has blessed your family with daily miracles. I pray that the new addition enters this world safely and I look forward to seeing Scout as the big sister!

  11. Mary Canady says:

    Thank you for sharing. You and yours are such a blessing in our lives!!! Happy anniversary and congratulations on the birth of Ash!!!

  12. Ann Hammond says:

    so glad all is going well for you all. Looking forward to seeing you all next time we visit. Ash is so precious and has a wonderful family! You all have been and continue to be in my prayers. Saw Colin last weekend and he was happy to hear your news and glad everything ‘s going well. Love ya’ll!

  13. Nancy Skinner says:

    Thank you for sharing your anniversary day with us. You are all precious to us. May the Lord continue to keep you in His hand. I know He will. Our anniversary was June 12th. It is hard NOT to think about what happened a year ago. Love you!

  14. Kara Whiting says:

    I just cried my eyes out. SO so so sweet. What a precious family. I am so glad to hear yall are doing so wonderfully. I pray that things continue to go well. Those kids have the best role models in the whole world. That song…….beautiful, that just made my week. :) Love and miss yall!

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